What will the 2013 China Summit Agenda Accomplish?
Hosted collaboratively by the Newborn Foundation, China’s National Office for Maternal and Child Health Surveillance, and the Chinese Preventive Medicine Association (CPMA) the 2013 China Summit on Newborn Screening & Early Detection of Congenital Heart Disease will:
- Bring together domestics and international thought leaders, implementation experts, and clinicians in support of technology enabled newborn screening, diagnostics and follow up treatment
- Provide a public health backdrop for successful newborn population health screening
- Build infrastructure, screening, diagnostic and treatment capacity supporting intervention and followup care for neonates and infants
- Define best practices for screening implementation, clinical diagnostics, followup treatment and care coordination
- Provide FDA-based and clinical guidance on screening technologies and equipment appropriate for use in neonates
- Enhance understanding of health IT, data, surveillance, diagnostic followup, and tele-health
- Demonstrate efficacy and bolter support for expanded IT-enabled access for screening, data collection, surveillance, diagnostics, tele-health and follow up care
- Formulate and build consensus around phase 1 of the Newborn HeartConnect pilot project to advance newborn heart screening for all babies – supporting early detection, improved care and outcomes, reducing morbidities and overall healthcare costs associated with delayed diagnosis
- Build public health infrastructure, screening, diagnostic and treatment capacity supporting intervention and followup for neonates and infants requiring care
- Build consensus around phase 1 of the Newborn HeartConnect pilot project implementation to advance newborn heart screening for all babies – supporting early detection, improved care and outcomes, reducing morbidities and overall healthcare costs associated with delayed diagnosis
- Support early adoption, high-profile models (centers of excellence) and peer education
- Reduce disparities in screening coverage and follow up care between communities, regions and provinces throughout China
Importantly, public health officials have recognized the need for significant infrastructure investments to advance detection and intervention for the youngest pediatric heart patients, including:
- Universal deployment of screening devices and equipment appropriate, and effective for use in neonates
- Effective public hospital and birth facility education, training and implementation
- A follow up diagnostic framework for babies with suspected CHD
- Access to appropriate pediatric cardiac counsel, treatment and follow up care
- A robust telehealth, electronic results reporting/followup/surveillance infrastructure
- Recognition of current screening methodologies for detection of heart disease in older children (older than 12 months of age) in pediatric health and public school
Learn more about the state by state adoption of newborn heart screening in the United States.
The summit is just one component. The other is a concentrated pilot project, built around two key geographies – Beijing and urban and rural delivery centers in Sichuan province.
In advance of the Beijing summit, the international delegation will be spending 2 field days in Sichuan Province speaking with clinical and public health leaders about screening challenges and opportunities in urban and rural/county hospital settings in China.